Lived experience work
I have been involved in a variety of lived experience groups and roles, with a particular interest in paediatric palliative care, oncology, communication and humanising health and social care.
Organisations that I have worked with include:
The Patient & Public Involvement (PPI) group for the Strategic Clinical Network, NHS SE England,
The PPI group for BOB Integrated Care Board Managed Clinical Network
Cicely Saunders Institute of Palliative Care, Policy & Rehabilitation, Kings College
Centre for Clinical and Community Applications of Health Psychology, Southhampton University
Biosciences, University College London
Children’s Nursing and Health visiting and School nursing, Oxford Brookes University
Oxford Cancer and Medical Education, both at University of Oxford
Public Reviewing, National Institute of Health and Care Research
Are you looking for a PPI contributor or somebody with lived experience of being a carer? I have a variety of related experiences, including of health care, social care, paediatric palliative care, oncology, continuing care and bereavement. I am keen to make a difference, in Neve’s name, to other children and families.
If any of this resonates, don’t hesitate to connect with me.